Saturday 9 April 2011

Finally .....

Well hello! I've been meaning to do this for sometime but never really got around to it, despite having oodles of time on my hands. Over the last few days my condition (the dreaded POEMS) has decided to shut off the circulation to my left foot after around an hour of sleep.  I'm then awake for an hour or two while I discover new and interesting ways to restore the circulation and then grab another hour of sleep before the process starts again.  It's now, right here that blood is trickling back to my foot so I can get back to sleep. The foot won't feel normal like yours, it hasn't felt normal for 6 months but there'll be respite enough for now. So I'm going to attempt sleep now but I'm sure I'll be back very soon when I'll tell you all about this nasty disease called POEMS.

2 comments:

  1. Rare one mart, also now as crow-fukase syndrome. only seen it once in all my time hanging around hospitals and we shipped the guy to UHW so didn't see any of the treatment. we found out later what the diagnosis was as a lot of head scratching had been done about the guy. Are they still going for chemo or changing route now they have a definitive diagnosis? keep the faith mart, your attitude will be crucial to how thing go on. Sleep when you can, eat well and stay strong. I know how debilitating sleep deprivation can be as not had a full nights sleep since my big op in 06 but I've adapted how i get by and threw working out of the window as the extra pressure would have pushed me over the edge me thinks! PENSION, if you can get it go for it, love to you and yours. lyn x

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